Alongside a parallel study in the US funded by the National Institute of Health, we are conducting a national multi-site longitudinal study in Canada with 700 families to address gaps in palliative care. In this study we are recruiting children and their parents receiving palliative care at the Hospital for Sick Children, Children’s Hospital of Eastern Ontario and McMaster Children’s Hospital. We are asking children about their experiences with their illness and how they are feeling. We are also asking parents about their experiencing caring for a child with a life threatening illness and their goals of care. We want to better understand children’s symptoms and quality of life, parent distress and goals of care and how these may be related to each other as well as how they may impact on the use and cost of healthcare services.
Kimberley Widger (Principal Investigator)
Chris Feudtner (Co-Principal Investigator)
Canadian Institutes for Health Research Project Grant
(4 years, $657,900)
Icon made by Freepik from www.flaticon.com