How Have We Changed? Pediatric Palliative Care in Canada, 2002–2012

In 2002, there were 8 designated pediatric palliative care programs in Canada. At that time, we conducted a study to describe the children who received care through these programs and estimated the number of children who might benefit, versus the number who actually received care through these programs. As of 2012, there were 13 pediatric palliative care programs in Canada, but the impact of this growth in the number of programs was unknown. In this study, we are looking at changes over the 10 years since the original study in services provided, demographics of the children who receive care, circumstances of the children’s deaths, and the proportion of children who now receive care through these programs.

Current Status



Widger, K., Davies, D., Drouin, D., Beaune, L., Daoust, L., Farran, P., Humbert, N., Nalewajek, F., Rattray, M., Rugg, M., Bishop, M. (2007). Pediatric patients receiving palliative care in Canada: Results of a multicentre review. Archives of Pediatrics & Adolescent Medicine, 161, 597-602.

Widger, K., Davies, D., Rapoport, A., Vadeboncoer, C., Liben, S., Sarpal, A., Stenekes, S., Cyr, C., Dauost, L., Gregoire, M.C., Robertson, M., Hodgson-Viden, H., Laflamme, J., & Siden, H. (2016). Pediatric palliative care in Canada in 2012: A cross-sectional descriptive study. CMAJ Open, 4(4), e562-568. doi:10.9778/cmajo.20160054

Icon made by Freepik from

Team Members

Kimberley Widger Dawn Davies Marie-Claude Gregoire Stephen Liben Marli Robertson Adam Rapoport Hal Siden Chris Vadeboncoeur

Funded by

Connaught New Researcher Award, University of Toronto (1 year, $10,000)