PUBLICATIONS

• Development of decision-making skills among caregivers of children with medical complexity.  Finlay, M., Chakravarti, V., Buchanan, F., Dewan, T., Adams, S., Mahant, S., Nicholas, D., Widger, K., Mangonon McGuire, K., & Nelson, K. (accepted). JAMA Network Open
• Specialty palliative care and symptom severity and control in adolescents and young adults with cancer. Gupta, S., Li, Q., Kassam, A., Rapoport, A., Widger, K., Chalifour, K., Baxter, N.N., Nathan, P.C., Coburn, N.G., & Sutradhar, R. (2023). JAMA Network Open, 6(10):e2338699
• Experience of care among adults with acute leukemia near the end of life: A scoping review. Malakian, A., Rodin, G., Widger, K., Ali, R., Mahendiran, A.E., & Mayo, S.J. (2023). Journal of Palliative Medicine, Early online: https://doi.org/10.1089/jpm.2023.0130
• Morbidity and healthcare use among mothers of children with cancer: A population-based study. Desai, A., Sutradhar, R., Lau, C., Widger, K., Lee, D.S., Nathan, P.C., & Gupta, S. (2023). Pediatric Blood and Cancer, 70(10):e30612.
• Prevalence and risk factors for moral distress in pediatric oncology health care professionals. Mathews, N., Alodan, K., Kuehne, N., Widger, K., Locke, M., Fung, K., Gandhi, S., McLean, J., & Alexander, S. (2023)  JCO Oncology Practice, 19(10):917-924.
• Intensity of end-of-life care among children with life-threatening conditions: A national population-based observational study. Widger, K., Brennenstuhl, S., Nelson, K.E., Seow, H., Rapoport, A., Siden, H., Vadeboncoeur, C., Gupta, S., & Tanuseputro, P. (2023). BMC Pediatrics, 23:375
• The sensory experience of waiting for parents of children awaiting transplant: A narrative ethnography. Smith, K.A., Widger, K., Arbour-Nicitopoulos, K.P., & Gibson, B.E. (2023). Qualitative Health Research. Advance online publication. https://doi.org/10.1177/1049732323118289
• Location of death among children with life-threatening conditions: A national population-based observational study using the Canadian Vital Statistics Database (2008 – 2014). Widger, K., Brennenstuhl, S., Tanuseputro, P., Nelson, K.E., Rapoport, A., Seow. H., Siden, H., Vadeboncoeur, C., & Gupta, S. (2023). CMAJ Open, 11(2): E298-E304
• Measuring pediatric palliative care quality: Challenges and opportunities. Boyden, J.Y., Bogetz, J.F., Johnston, E.E., Thienprayoon, R., Williams, C.S., McNeil, M.J., Patneaude, A., Widger, K., Rosenberg, A.R., & Ananth, P. (2023).  Journal of Pain and Symptom Management, 65(5):e483-e495
• Clinical characteristics of children with severe neurologic impairment: A scoping review. Nelson, K.E., Finlay, M., Huang, E., Chakravarti, V., Feinstein, J.A., Diskin, C., Thomson, J., Mahant, S., Widger, K., Feudtner, C., & Cohen, E. (2023). Journal of Hospital Medicine, 18(1):65-77.
• The effect of specialized palliative care on end-of-life care intensity in AYAs with cancer. Jewitt, N., Rapoport, A., Gupta, A., Srikanthan, A., Sutradhar, R., Luo, J., Widger, K., Wolfe, J., Earle, C.C., Gupta, S., & Kassam, A. (2023).  Journal of Pain and Symptom Management, 65(3):222-232.

• Exploring pediatric nurses’ perspectives on their work environment, work attitudes, and experience of burnout: What really matters? Buckley, L., Berta, W., Cleverley, K., & Widger, K. (2022). Frontiers in Pediatrics, 10, 851001.
• Children’s health care utilization and cost in the last year of life: A cohort comparison with and without regional specialist pediatric palliative care. Lysecki, D.L., Gupta, S., Rapoport, A., Rhodes, E., Spruin, S., Vadeboncoeur, C., Widger, K., & Tanuseputro, P. (2022). Journal of Palliative Medicine, 25(7) 1031-1040.

• Impact of palliative care involvement on end-of-life care patterns among adolescents and young adults with cancer: A population-based cohort study. Kassam, A., Gupta, A., Rapoport, A., Srikanthan, A., Sutradhar, R., Luo, J., Widger, K., Wolfe, J., Earle, C., & Gupta, S. (2021). Journal of Clinical Oncology, 39(22), 2506-2515.
• The relationships amongst pediatric nurses’ work environments, work attitudes, and experiences of burnout. Buckley, L., Berta, W., Cleverley, K., & Widger, K. (2021). Frontiers in Pediatrics, 9,807245
  Postier, A.C., Wolfe, J., Hauser, J., Remke, S.S., Baker, J.N., Kolste, A., Dussel, V., Bernadá, M., Widger, K., Rapoport,
• Education in palliative and end-of-life care-pediatrics: Curriculum use and dissemination. A., Drake, R., Chong, P. H., & Friedrichsdorf, S.J. (2021). Journal of Pain and Symptom Management, 63(3):349-358
• Development of a patient-reported outcome measure for the assessment of symptom burden in pediatric chronic kidney disease (PRO-Kid). Jawa, N.A., Rapoport, A., Widger, K., Zappitelli, M., Davison, S.N., Jha, S., Dart, A.B., & Matsuda-Abedini, M. (2021).  Pediatric Nephrology, 37(6);1377-1386
• Top ten tips palliative care clinicians should know about prognostication in children. Bergstraesser, E., Thienprayoon, R., Brook, L.A., Fraser, L.K., Hynson, J.L., Rosenberg, A.R., Snaman, J.M., Weaver, M.S., Widger, K., Zernikow, B., Jones, C.A., & Schlögl, M. (2021). Journal of Palliative Medicine, 24(11), 1725–1731.
• Validation of neurologic impairment diagnosis codes as signifying documented functional impairment in hospitalized children. Nelson, K.E., Chakravarti, V., Diskin, C., Thomson, J., Cohen, E., Mahant, S., Feudtner, C., Widger, K., Pullenayegum, E., Berry, J.G., & Feinstein, J.A. (2021). Academic Pediatrics, 22(5): 782-788.
  McMurray, J., Widger, K., Stephenson, A.L., & Stremler, R. (2022). Actigraphic and patient and family reported sleep outcomes in children and youth with cystic fibrosis: A systematic review. Journal of Cystic Fibrosis, 21(2): e49-e82.
• Self-reported experiences of siblings of children with life-threatening conditions: A scoping review. Tay, J., Widger, K., & Stremler, R. (2021).  Journal of Child Health Care, 26(4): 517-530
• Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach. Boyden, J.Y., Feudtner, C., Deatrick, J.A., Widger, K., LaRagione, G., Lord, B., & Ersek, M. (2021). BMC Palliative Care, 20(1), 17.
• End-of-life childhood cancer research: A systematic review. Hasan, F., Widger, K., Sung, L., & Wheaton, L. (2021). Pediatrics, 147(3), e2020003780.
• What do parents value regarding pediatric palliative and hospice care in the home setting? Boyden, J.Y., Ersek, M., Deatrick, J.A., Widger, K., LaRagione, G., Lord, B., Feudtner, C. (2021). Journal of Pain and Symptom Management, 61(1): 12-23.
• Pediatric Project ECHO®: A Virtual Community of Practice to Improve Palliative Care Knowledge and Self-Efficacy among Interprofessional Health Care Providers. Lalloo, C., Osei-Twum, J.A., Rapoport, A., Vadeboncoeur, C., Weingarten, K., van Zanten, S.V., Widger, K., & Stinson, J. (2021). Journal of Palliative Medicine, 24(7):1036-1044.
• Optimising the process for conducting scoping reviews. Pawliuk, C., Brown, H.L., Widger, K., Dewan, T., Hermansen, A.-M., Grégoire, M.-C., Steele, R., & Siden, H. (2021). BMJ Evidence-Based Medicine, 26:312

• Transition from children’s to adult services for adolescents/young adults with life-limiting conditions: Developing realist programme theory through an international comparison. Kerr, H., Widger, K., Cullen-Dean, G., Price, J., O’Halloran, P. (2020). BMC Palliative Care, 19:115
• What is known about paediatric nurse burnout: A scoping review. Buckley, L., Berta, W., Cleverley, K., Medeiros, C., & Widger, K. (2020).  Human Resources for Health, 18(1):9
• Decision aids available for parents making end-of-life or palliative care decisions for children: A scoping review. Medeiros, C., Buckley, L., Metcalfe, K., Narayanan, U.G., & Widger, K. (2020). Journal of Paediatrics & Child Health, 56(5):692-703
• Scoping review of symptoms in children with rare, progressive, life-threatening disorders. Pawliuk, C., Widger, K., Dewan, T., Brander, G., Brown, H.L. Hermansen, A.M. Gregoire, M.C., Steele, R., & Siden, H. (2020).  BMJ Supportive & Palliative Care, 10:91-104.

• Specialized pediatric palliative care in neonates with life-limiting illness: A systematic review. Zuniga-Villanueva, G., Widger, K., Medeiros, C., Trenholm, M., & Streuli, J. (2021). American Journal of Perinatology, 38(S01): e318-e329.
• Discharge planning in mental healthcare settings: A review and concept analysis. Xiao, S., Widger, K., Berta, W., & Tourangeau, A. (2019). International Journal of Mental Health Nursing, 28(4):816-832.
• Factor structure of the quality of children’s palliative care instrument (QCPCI) when completed by parents of children with cancer. Widger, K., Brennenstuhl, S., Duc, J., Tourangeau, A., & Rapoport, A. (2019). BMC Palliative Care, 18:23
• Impact of specialized pediatric palliative care programs on communication and decision-making. Streuli, J., Widger, K., Medeiros, C., Zuniga-Villanueva, G., & Trenholm, M. (2019). Patient Education and Counseling, 102(8):1404-1412
• Indicators used to assess the impact of specialized pediatric palliative care: A scoping review. Widger, K., Medeiros, C., Trenholm, M., Zuniga-Villanueva, G., & Streuli, J.C. (2019). Journal of Palliative Medicine, 22(2), 199-219.

• National impact of the EPEC-Pediatrics train-the-trainer model for delivering education on pediatric palliative care. Widger, K., Wolfe, J., Friedrichsdorf, S., Pole, J. D., Brennenstuhl, S., Liben, Greenberg, M., Bouffet, E., Siden, H., Husain, A., Whitlock, J. A., Leyden, M., Rapoport, A. (2018). Journal of Palliative Medicine. Doi: 10.1089/jpm.2017.0532
• Emerging methodologies in pediatric palliative care research: Six case studies. Nelson, K.E., Feinstein, J.A., Gerhardt, C.A., Rosenberg, A.R., Widger, K., Faerber, J.A. & Feudtner, C. (2018).  Children, 5(3), 32 doi: 10.3390/children5030032
• The minimally effective dose of sucrose for procedural pain relief in neonates: A randomized controlled trial. Stevens, B., Yamada, J., Campbell-Yeo, M., Gibbins, S., Harrison, D., Dionne, K., Taddio, A., McNair, C., Willan, A., Ballantyne, M., Widger, K., Sidani, S., Estabrooks, C., Synnes, A., Squires, J., Victor, C., & Riahi, S. (2018). BMC Pediatrics. 18(1), 85. https://doi.org/10.1186/s12887-018-1026-x
• Predictors of specialized pediatric palliative care involvement and impact on patterns of end-of-life care in children with cancer. Widger, K., Sutradhar, R., Rapoport, A., Vadeboncoeur, C., Zeltzer, S., Kassam, A., Nelson, K., Liu, Y., Wolfe, J., Earle, C., Pole, J., Gupta, S. (2018). Journal of Clinical Oncology, 36(8), 801-807. Doi: 10.1200/JCO.2017.75.6312
• Sibling voices: A prospective investigation of experiences with a dying child. Eaton Russell, C., Widger, K., Beaune, L., Neville, A., Cadell, S., Steele, R., Rapoport, A., Rugg, M., & Barrera, M. (2018). Death Studies, 42(3), 184-194. Doi: 10.1080/07481187.2017.1334009

• The validity of using health administrative data to identify the involvement of specialized pediatric palliative care services in children with cancer in Ontario, Canada. Widger, K., Vadeboncoeur, C., Zeltzer, S., Liu, Y., Kassam, A., Sutradhar, R., Rapoport, A., Nelson, K., Wolfe, J., Earle, C., Pole, J., Gupta, S. (2017). Journal of Palliative Medicine, 20(11),1210-1216. Doi: 10.1089/jpm.2017.0028
• Children’s end-of-life health care use and cost. Widger, K., Seow, H. Rapoport, A., Chalifoux, M., & Tanuseputro, P. (2017). Pediatrics, 139(4), e20162956 doi: 10.1542/peds.2016-2956
• General paediatric inpatient deaths over a 15-year period. Roth, A., Rapoport, A., Widger, K., & Friedman, J. (2017).  Paediatrics and Child Health, 22(2), 80-83. Doi: 10.1093/pch/pxx005

• Nursing process healthcare indicators: A scoping review of development methods. Xiao, S., Widger, K., Berta, W., & Tourangeau, A (2016). Journal of Nursing Care Quality. 32(1), 32-39. Doi: 10.1097/NCQ.0000000000000207
• Predictors of and trends in high-intensity end-of-life care among children with cancer: A population-based study using health services data. Kassam, A., Sutradhar, R., Widger, K., Rapoport, A., Pole, J., Nelson, K., Wolfe, J., Earle, C., & Gupta, S. (2016).  Journal of Clinical Oncology, 35(2), 236-242. Doi:10.1200/JCO2016.68.8283
• Pediatric palliative care in Canada in 2012: A cross-sectional descriptive study. Widger, K., Davies, D., Rapoport, A., Vadeboncoer, C., Liben, S., Sarpal, A., Stenekes, S., Cyr, C., Dauost, L., Gregoire, M.C., Robertson, M., Hodgson-Viden, H., Laflamme, J., & Siden, H. (2016). CMAJ Open, 4(4), e562-568. Doi:10.9778/cmajo.20160054
• Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer. Widger, K., Friedrichsdorf, S., Wolfe, J., Liben, S., Bouffet, E., Greenberg, M., Husain, A., Pole, J., Siden, H., Whitlock, J., & Rapoport, A. (2016). BMC Palliative Care, 15.  

• Discourse: Needless suffering. Widger, K. (2015). Canadian Journal of Nursing Research, 47(2), 9-17.
• Enhancing the quality of palliative care for children with cancer: A nationwide train-the-trainer educational initiative. Widger, K., Bouffet, E., Friedrichsdorf, S., Greenberg, M., Husain, A., Liben, S., Pole, J., Siden, H., Whitlock, J., Wolfe, J., & Rapoport, A. (2015). Paediatrics & Child Health, 20(3), 157-158.
• The effectiveness of toolkits as knowledge translation strategies for integrating evidence into clinical care: A systematic review. Yamada, J., Shorkey, A., Barwick, M., Widger, K., & Stevens, B. (2015). BMJ Open, 5, e006808.
• Initial development and psychometric testing of an instrument to measure the quality of children’s end-of-life care. Widger, K., Tourangeau, A., Steele, R., & Streiner, D. (2015). BMC Palliative Care, 14.

• Work, work environments and other factors influencing nurse faculty intention to remain employed: A cross-sectional study. Tourangeau, A. E., Saari, M., Patterson, E., Ferron, E. M., Thomson, H., Widger, K., & MacMillan, K. (2014). Nurse Education Today, 34(6), 940-947.

• Determinants of nurse faculty intention to remain employed. Tourangeau, A. E., Thomson, H., Saari, M., Widger, K., Ferron, E. M., & MacMillan, K. (2012). Open Journal of Nursing, 3, 254 – 261.

• Mentoring advanced practice nurses in research: Recommendations from a pilot program. Leung, D., Widger, K., Howell, D., Nelson, S., & Molassiotis, A. (2012). Canadian Oncology Nursing Journal, 22(1), 31-35 (in English) and 36-41 (in French).

• Post-acute stroke patient outcomes in Ontario, Canada complex continuing care settings. Tourangeau, A. E., Squires, M. E., Wodchis, W., McGilton, K., Teare, G., & Widger, K. (2011). Disability and Rehabilitation, 33(2), 98-104.

• Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: Charting the territory. Siden, H., Steele, R., Brant, R., Cadell, S., Davies, B., Straatman, L., Widger, K., & Andrews, G. (2010). BMC Pediatrics, 10, 67.

• Culturally-sensitive information-sharing in pediatric palliative care. Davies, B., Contro, N., Larson, J., & Widger, K. (2010). Pediatrics, 125, e859-e865.

• Exploring the supportive care model as a framework for pediatric palliative care. Widger, K., Steele, R., Oberle, K., & Davies, B. (2009). Journal of Hospice & Palliative Nursing, 11(4), 209-216.

• Work environments and staff responses to work environments in institutional long-term care. Tourangeau, A., Widger, K., Cranley, L., Bookey-Bassett, S., & Pachis, J. (2009). Health Care Management Review, 34(2), 171-181.

• Job satisfaction among a multigenerational nursing workforce. Wilson, B., Squires, M., Widger, K., Cranley, L., & Tourangeau, A. (2008). Journal of Nursing Management, 16, 716-723.

• Parents’ perceptions of the quality of pediatric and perinatal end-of-life care. Widger, K., & Picot, C. (2008). Pediatric Nursing, 34, 53-58.

• Pediatric patients receiving palliative care in Canada: Results of a multicenter review. Widger, K., Davies, D., Drouin, D., Beaune, L., Daoust, L., Farran, P., Humbert, N., Nalewajek, F., Rattray, M., Rugg, M., & Bishop, M. (2007).  Archives of Pediatrics & Adolescent Medicine, 161, 597-602.  [JAMA Pediatrics since 2013]

• Generational differences in acute care nurses. Widger, K., Pye, C., Cranley, L., Wilson-Keates, B., Squires, M., & Tourangeau, A. (2007). Canadian Journal of Nursing Leadership, 20(1), 49-61.

• What are the key components of quality pediatric and perinatal end-of-life care? A literature review. Widger, K., & Wilkins, K. (2004). Journal of Palliative Care, 20(2), 105-112.

• Psychosocial needs of families with a child with cancer. Ljungman, G., McGrath, P., Cooper, E., Widger, K., Ceccolini, J., Fernendez, C., Frager, G., & Wilkins, K. (2003). Journal of Pediatric Hematology and Oncology, 25(3), 223-231.