End of Life Health Care Use for Children with Life Threatening Conditions: A National Population Based Study (NEW)

A child’s death has a life-long and potentially traumatic impact on families, communities and even the health professionals who provide care. Thus, it is important to provide the highest quality of care. Improved understanding of current health care usage patterns for children at the end of life may reveal particular patient characteristics, needs, and opportunities to enhance care quality. We have partnered with Statistics Canada to identify all of the children who died from a life-threatening condition (e.g., cancer, genetic disorder, neurological conditions) in Canada during a 5-year period. We will examine the care that was given to them in hospitals over the weeks and months leading up to their death and see if any differences in the type of care given or the location where they died was linked to their age, sex, diagnosis, family income, living in a rural setting, which province they died in, or whether palliative care services were involved in providing care.

Current Status

Data Analysis

Team Members

Kimberley Widger (Principal Investigator) Sumit Gupta Adam Rapoport Hsien Seow Harold Siden Peter Tanuseputro Christina Vadeboncoeur

Funded by

Canadian Institutes for Health Research Operating Grant: Analysis of existing Canadian cohorts and databases related to reproductive, child and maternal health (1 year, $75,000)

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