The goal of the Pathways to Enhanced Pediatric Palliative Care research program is to examine and enhance the quality of palliative care provided to children living with life-threatening illnesses and their families.
What is Pediatric Palliative Care ?
Pediatric palliative care focuses on alleviating the physical, social, psychological, and spiritual suffering experienced by children and families while promoting quality of life, fostering family connections, and sustaining hope despite the possibility of death. It is a family-centered approach that includes shared decision-making and sensitivity to the family’s cultural and spiritual values, beliefs, and practices. The principles of palliative care can and should be incorporated from diagnosis of any life-threatening illness and continue throughout the disease to ensure relief of suffering and good quality of life regardless of whether the child is ultimately cured of the disease or not.
I use the term pathways to describe my program of research because of the many routes that need to be explored through research to enhance the quality of pediatric palliative care. In particular, my program of research is focused on three paths: 1) synthesis of existing knowledge, 2) creation of new knowledge, and 3) translation of knowledge into best clinical practices.